The Christmas spirit is running wild in our new home. Griffin is most definitely my son, and much to his Papa’s dismay, he has even more enthusiasm for Christmas decorating that I do. This year he got to spend the night at Nana and Grandpa’s and help put up their tree and decorations.
No more than 3 minutes passed after he arrived home from that adventure and he was asking to put up our tree. Let me tell you, the kid was relentless! So we put up the tree and in the next couple of days got out the rest of the décor until every bulb was hung, every strand of lights plugged in, and every wreath on their hook.
Griffin the Christmas Elf still wasn’t satisfied. The tree was up, but there were no presents under it. I tried to explain that we could wrap gifts once we bought them, but we didn’t have any to do yet. Unacceptable. He got out the wrapping paper, his scissors, and some tape and started to wrap up toys he already has – like the guitar and saw below. Still not enough. Those presents needed bows! So bows he made.
he was done wrapping presents I took the supplies away from him and told him we didn’t need to wrap anymore of our own things up, he moved on to his next task – ripping small scraps of wrapping paper and taping them to the tree for “extra decorations so Santa knows which tree is ours”.
I just love seeing Christmas through his eyes. The awe and wonder and excitement for every little detail is just precious. This is the first year he really understands the concept of Santa and is just so curious and excited for it all. The innocence of youth is just so refreshing.
Fun fact about me: I’m kind of an all or none person. I see in black and white and have a harder time with the grey areas. When I do something, I want to fully commit to it and go all in. If, for whatever reason, I can’t give it my all anymore, I abandon ship and give up. It is a character flaw of mine.
Exhibit A: This blog. I wish I had made the time and had the energy to keep it updated. When days and weeks pass between entries, it makes me even less inclined to post anything new.
Exhibit B: Bennett’s PECS book. I wanted to make him one. I didn’t know where to start and my wonderful BFF offered to make one for him if I just gave her a list. I can’t do it. If I don’t have exactly every picture we need, I don’t want to do it. All or none.
Exhibit C: The boys’ baby books. Don’t even get me started. I had to dig through Griffin’s earlier this week to get his immunization records and had to brush aside a cobweb or two to get to it.
You get the picture.
News flash! Things aren’t always black and white. The world will not implode if I only get around to blogging once a month. Some PECS is better than none. And my boys won’t really care if there is no record of the first time they sat unassisted.
Whew. I feel better already. Grey might be ok so sometimes.
I love to write. And I’m thankful for a new friend for inspiring me to post again. Even if you haven’t seen me for months and it may be months before I make it back again; I’m here today, embracing the grey!
B has had five sessions of ST now with little progress being made, though I can’t say I expected to see much at this point. Two sessions ago his SLP suggested he be evaluated for additional services. She thought he could really benefit from Occupational Therapy as well. Sigh. Of course she did.
So I got on the phone. Last week a team from the early intervention services came out to our house and conducted an initial screening to see if he would qualify for a full evaluation for state services. Of course he did.
On Thursday another professional from EI will come out to do the paperwork and parent interview with me. Unfortunately Travis is working in North Dakota this week, so he isn’t able to be a part of that portion. The following Tuesday she will come back and do the part 1 of the full evaluation with B to determine which type(s) of therapy he qualifies for.
More evaluations more therapies. I’m just ready to get some answers and get B the right kind of help he needs. It is clear that there is more going on than a language delay. I’m his mama – I know something isn’t right. We just need to figure out what it is. I don’t want to make something be there that’s not, but at the same time if there is something there, I want to figure it out sooner than later. And now we have a team of objective professionals to do just that and help us navigate through this, whatever it is.
I do have to say that I am SO impressed with the school district’s EI process. They are quick and incredibly supportive, informative, and helpful. I don’t feel like it’s a big waiting game with them. They are on the ball and have kept things moving along quickly. The service coordinator even sent me a list of Pediatricians that families going through similar things as we are have found helpful. I can’t even explain what a weight off of my shoulders that was. Being new to the area and not knowing (m)any people has made finding a good doctor for B a shot in the dark. I’m a big fan of word-of-mouth referrals, and now I have some. I am going to cross check her list with our insurance tonight and hopefully pick a new doctor sooner than later.
Progress is being made. Bit by bit.
We are in the midst of an adventure right now. Our first real go at dog sitting. I’m not an animal person and I wasn’t raised with pets. I think they’re slobbery and gross. They mess up my house, and I can do that on my own, without the added help from the four-legged pals.
My parents (and the rest of my family) are all in CO this week for my cousin’s wedding. Sadly, we chose to stay back rather than navigate the airport and a week away from home with Bennett. Which left us with the pleasure of hosting two furry friends at our house for a week. It’s just one week and I knew Griffin would love it.
Griffin is in his element. He feeds the dogs, makes them sit before giving them their treats, tells them to be good before we leave in the morning, and shares his room / bed with them at night. It’s pretty adorable to watch.
“Hey Mama, Ralphie is a horse!”
“I think Ralph is cold, so I covered him up.”
BooBoo is more like me. This is what he thinks of the extra company.
Dogs? What dogs?
I’m being a tad dramatic, because we really did have a lot of fun playing outside with them last night and they have been VERY well-behaved so far. They leave us alone at meal times, they don’t bark, and they go outside and do their business (relatively) quickly. So far, no complaints. Not that I want to keep them or get any of my own or anything, so don’t go getting any ideas about that.
We’re poking away at projects around the house and I’m pretty darn thrilled with how our first repainted and decorated room has come together. We plan to be at this house for a very long time, so unlike the last house which we kept pretty white the entire time we were there, with the exception of the boys’ bedrooms, we want to decorate this place and make it homey. I have so many ideas and projects I want to try, now I just have to find the time (and money) to get them done. One room at a time. First up, the boys’ bathroom.
I searched for the perfect shower curtain for weeks. I couldn’t decide on what theme I wanted and kept going to different stores and leaving empty-handed. I finally found and fell in love with this one online.
Unfortunately it was last season’s design and none of these cute coordinating pieces were available anymore.
It didn’t matter, because it was too cute to pass up – I had to have the monster theme for the boys! I ordered the curtain and got in touch with a wonderfully talented women and asked her to make some wall art to complement it. She did an amazing job and I just love them. The picture is from my phone and not the best quality, but they say Little Monsters Wash Their Hands, Little Monsters Flush The Toilet, Little Monsters Love Taking Baths, and Little Monsters Brush Their Teeth.
After we had the curtain and wall art, I let Travis pick the paint color (scary, I know, but he did great) and get busy. I happened upon the rug on a clearance end-cap in Target for $5 and voila, our bathroom is complete.
Next up is Griffin’s room. Goodbye pink walls!
I come bearing great news today! We haven’t even started Bennett’s therapy yet, but already we’re making progress. When we initially contacted our insurance to see what our coverage was for this kind of thing, they told us we would get 20 visits per calendar year. If you do the math, at twice a week, that only works out to 10 weeks of therapy. We were pretty crushed. I scheduled his appointments and pouted while wondering what other options we would have. I talked it over, under, and around with anyone who would listen to me and decided that if we could go 20 times before having to pay out-of-pocket, that we would drop down to once a week visits and be covered through November, pay for a month, and then get 20 more visits starting January 1. It wasn’t ideal, but it was the best I could think of with what we were given. I made peace with that and have been anxiously awaiting our first appointment.
I got home and opened the single, most glorious piece of mail I’ve received in a very long time. Our insurance reviewed our request and Bennett’s evaluation report and approved us for 104 visits a year!! I cried. I was so excited, happy, hopeful, relieved, thankful, you name it. We can now go twice a week for an entire year! It was just me and the kiddos at home when I found out, so we set up the slip ‘n slide, got freezie pops, and celebrated in the sun.
I take it all back.
When I called the clinic this morning to get him on the schedule for twice a week, they told me that they got that letter too, but it didn’t matter. She said that the billing unit and the benefits unit at health insurance companies don’t communicate with each other, so even though the letter said we were approved for 104 visits a year, they are still only going to pay for 20.
What a cruel joke to play on someone.